{"id":2859,"date":"2023-11-28T19:03:58","date_gmt":"2023-11-28T19:03:58","guid":{"rendered":"https:\/\/scottishvaccineinjurygroup.org\/?page_id=2859"},"modified":"2023-11-28T19:05:33","modified_gmt":"2023-11-28T19:05:33","slug":"hayley-copy","status":"publish","type":"page","link":"https:\/\/scottishvaccineinjurygroup.org\/?page_id=2859","title":{"rendered":"Clare"},"content":{"rendered":"\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tBack to Our Stories<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Clare<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

I was a normal 54 year old working mum.\u00a0 A bit overweight but with no underlying health conditions.<\/p>

I got the Astra Zeneca\u00a0on 14\/4\/21 and had the usual flu like symptoms, but mine didn\u2019t go – they worsened and by 2\/5\/21 I was admitted to RAH Paisley with a spreading paralysis.<\/p>

They decided it was neurological and they don\u2019t have a neurology dept so liaised with QEUH.\u00a0 It was 3 weeks before I saw a neurologist and by then I was fully paralysed to chest level.\u00a0 I had very little movement in my arms and was experiencing facial drooping, hearing impairment and trouble breathing and swallowing.I was transferred to QEUH Glasgow on 29\/5\/21 and the neurologist there thought at that time that I had vaccine induced Guillone Barre Syndrome but this diagnosis changed to Acute Disseminated Encephalomyelitis complicated by Transverse Myelitis which is basically massive inflammation in the brain and spinal cord.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

\u00a0<\/p>

I received numerous treatments starting with steroids and immunoglobulin then plasma transfusions and eventually Retuximab seemed to help.\u00a0 On 19\/7\/21 I started to move the big toe on my left foot – this was the first time I had consciously been able to move. I had slight improvements after this and was eventually moved to PDRU (physically disabled rehabilitation unit) now known as the Neurological Rehabilitation Unit on 30\/9\/21.\u00a0 I was being transferred by hoist at this time but with twice daily physio I learned to transfer using a zimmer and to walk a few steps. I was discharged on 10\/12\/21.<\/p>

I was medically retired from my work as a civil servant in May \u201822.<\/p>

I have done physio on a daily basis and can now stand and walk short distances with my zimmer.\u00a0 I have weekly visits from my physio and am attempting to use crutches.\u00a0I\u2019m pretty sure I\u2019m as good as I\u2019m going to be but we haven\u2019t quite given up yet.\u00a0 My muscles seem strong but with the nerve damage I just seem to run out of steam.<\/p>

I have a weakness in my hands as well and struggle to write I think that might actually be what got me medical retirement as I find it impossible to make written notes when on the phone and thiscauses problems with eating.\u00a0 I sometimes need my husband (now carer) to cut my food.
I can\u2019t shower or do anything independently.\u00a0 \u00a0I did receive the vaccine damage payment but the reality is it doesn\u2019t clear your mortgage and modify a house for wheelchair use.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Back to Our Stories Clare I was a normal 54 year old working mum.\u00a0 A bit overweight but with no underlying health conditions. I got the Astra Zeneca\u00a0on 14\/4\/21 and had the usual flu like symptoms, but mine didn\u2019t go – they worsened and by 2\/5\/21 I was admitted to RAH Paisley with a spreading […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-2859","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/pages\/2859","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2859"}],"version-history":[{"count":4,"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/pages\/2859\/revisions"}],"predecessor-version":[{"id":2864,"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=\/wp\/v2\/pages\/2859\/revisions\/2864"}],"wp:attachment":[{"href":"https:\/\/scottishvaccineinjurygroup.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2859"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}